Thanks to my sisters we have raised some awareness by selling these cute stress balls at the Grand Latte coffee stand we work at. We appreciate all the support and donations our customers have provided!

Sam enjoying some soccer time with mom and dad. He would pretty much always rather be outside playing soccer than sitting on the couch- no matter how his feet are doing! His ability to get through pain to do what he loves seriously amazes me!

More about Sam

Sam just turned 8 years old and continues to amaze us with his strength every day. His main interests now are soccer and the weather! Sam loves science and especially loves learning about tornados. Sam's daily routine includes checking weather radar for developing storms. As for soccer, Sam loves playing and works on his foot skills often, no matter how his feet feel! He is a Seattle Sounders and Real Madrid fan.

It is EB Awareness week 2012. Sam took awareness bracelets to school today and they sold 100 of them to help fund research. We are so thankful for the support of his wonderful classmates! We have more available if you would like one. ($2 ea)
We still do not have a cure for this horrible disease but hopefully it will come soon with more awareness efforts to fund research.
Thank you for coming to this blog and learning more about EB. It means the world to us!

EB Skin Lesson

This Chart shows the layers of skin and the various locations that the skin will detach due to the inability of the anchoring filaments to hook the layers together.

The main forms of EB are:
EB Simplex, Junctional EB, and Dystrophic EB(Dominant or Recessive).
EB Simplex occurs in the outer layer of skin;
Junctional EB and Dystrophic EB occur in the basement membrane zone.

This information was borrowed from a Dept of Health Pamphlet on EB.

Sam will be Six in a couple of weeks. He will be starting public school for the first time - Kindergarten. He will be an older kindergartener since he missed the Sept. deadline last yr. That is ok because I think we needed an extra yr to prepare to send him out. He is very excited and loves to meet new people. 

Sam at park. He is almost six!