EB Awareness Week October 25-31 2014

Every year the last week of October is EB Awareness week. This year Samuel's aunt Angie helped by making beautiful butterfly earrings to sell to friends and family. We will be donating all funds raised to EBMRF this year.

Please learn more about EB and how you can help at the following sites:
www.ebkids.org
www.debra.org
www.ebresearch.org

Determination

Sam joined a soccer team again this year with cousin Damian. They are having a blast!

We are so proud of Sam for his determination to do those things he loves despite EB. 

He has so much passion for soccer and practices constantly to improve his skills! 

Pilot for a Day!

Sam was invited to participate in the "Pilot for a Day" program with the 141st Air Refueling Wing at Fairchild Airforce Base! Here are some pictures from the day, it was absolutely amazing! We are very thankful to everyone who participated and made this day extra special for Sam!

EB Awareness Bloomsday 2014

This year we did a Booster campaign to raise funds for Debra and bring awareness to EB. A little over $200 was raised for Debra from the Booster t-shirt campaign. Here are a few pics of us with our Team Sam shirts, it was a blast!

More Pics from Sam's Wish Trip

These were from the visit to the National Weather Center Norman, Oklahoma. 

                             Here Sam is looking at the dents in their vehicles from hail.

                                          New radar technology they are working on.

Sam's Wish Trip

Everyone who knows Sam knows he loves tornados and the weather! Here are some pics from Sam's wish trip to Norman, Oklahoma where he got to meet storm chaser Reed Timmer! Sam enjoyed every minute of it!  Thank you Wishing Star!

 He is still praying to see a tornado though :)

Run Bloomsday for a Cause This Year!! Join Team Sam!!!

Sam helped design these cool t-shirts at booster.com to help raise EB awareness and funds for research. This Bloomsday you can make a difference by running in your Team Sam shirt! Go online to www.booster.com/runforsam and get your t-shirt! Your support is appreciated!