Wish Trip

Sam found out Monday that we will be going to Norman, Oklahoma in April for his wish trip through Wishing Star! Sam is very into tornados and storm chasing and his trip will be related to these interests. He is very excited!

Wishing Star Event: Taste Spokane

Sam will be the featured wish kid at Taste Spokane, a fundraiser put on by Wishing Star. Tickets are available online - check it out!
www.tastespokane.com

Sam's new personal fundraising page

Here is Sam's new personal fundraising page made by EBhelp.org:  www.ebhelp.org/samuel-diaz/

Sammy's new buddy- Bolt!

Weather station tour

Sam had a chance to tour the National Weather Service station in Airway Heights the other day, he had a blast! He got to let off the weather balloon and check out all the cool radar on their computers. 

Fun time!

Sam in The Spokesman Review

Sam was interviewed a few weeks ago by the Spokesman Review, here's his article. He was so excited when he saw the article! Check it out- so proud of our Sam!

http://www.spokesman.com/stories/2013/nov/14/eight-year-old-doesnt-let-genetic-disorder-stop/

http://fxn.ws/1dRVs4X

 Here is a link to another article about a child with EB (same form as Sam's). Dr. Jakub Tolar gave a great description of how to explain what EB is. EB is so rare it is sometimes hard to explain to others exactly what is wrong with the skin, this is a simple way to explain it.

“(Collagen) is like a glue,” Dr. Jakub Tolar, director of the University of Minnesota Stem Cell Institute and an associate professor in the department of pediatrics at UM, told FoxNews.com. “We have several layers in the skin, and the two main layers – the dermis and the epidermis – are literally glued together like Velcro with loops of this collagen.  If you don’t have it, you will lose the surface of the skin, and that’s what these kids have.”