Sammy will be five this Sept. I remember telling people that I expected they would find a cure by the time he was five. Well, we are not quite there. This makes me real sad but I am thankful that Sammy has a strong spirit and is thriving in spite of this horrible disease. I hope and pray someday that Sam and all the other EB children could experience life without pain. I know God loves Sammy and I will leave him in God's hands to comfort him and give him the strength he needs to get through each day.
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