Are you strong enough to be me? I have EB.: Repost: Sam Diaz-EB Awareness Week Video

Thursday, October 26, 2017

Repost: Sam Diaz-EB Awareness Week Video

Sam made this video last year for EB Awareness Week so I thought I would share it again this year. He did a great job talking about living with EB!

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What is EB?

WHAT IS EB?
Epidermolysis Bullosa is a painful, life threatening disease of the skin. Our son Samuel has the Recessive Dystrophic form (RDEB). In his case the bottom layer of his skin does not adhere properly to the other layers because the collagen 7 protein involved in this function is either missing or mis-shapen.
Because of this genetic defect even slight friction can cause several layers of skin to rip away creating horrific, painful wounds. Normal daily activities can cause blistering or tearing of the skin. Currently there is no cure for EB, only wound management as treatment. Despite the challenges Sam faces with EB, he displays amazing strength every day and inspires those around him.

Thursday, October 26, 2017

Repost: Sam Diaz-EB Awareness Week Video

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