What is EB?

Epidermolysis Bullosa is a painful, life threatening disease of the skin. Sammy has the form called Recessive Dystrophic. In his case the bottom layer of his skin does not adhere properly to the other layers because the collagen 7 protein involved in this function is either missing or mis-shapen.
Because of this genetic defect even slight friction can cause several layers of skin to rip away creating horrific, painful wounds. Normal daily activities can cause blistering or tearing of the skin. Currently there is no cure for EB, only wound management as treatment. Despite the challenges Sam faces with EB, he displays amazing strength every day and inspires those around him.

Friday, June 27, 2014

Pilot for a Day!

Sam was invited to participate in the "Pilot for a Day" program with the 141st Air Refueling Wing at Fairchild Airforce Base! Here are some pictures from the day, it was absolutely amazing! We are very thankful to everyone who participated and made this day extra special for Sam!

No comments:

Post a Comment