Wednesday, August 31, 2016

For Sam, just like most individuals with EB, bath time is a very painful experience and causes him quite a bit of anxiety. Sam has much deeper, larger, chronic wounds at this age than he did a few years ago and battles infection more than before as well. A few times a week Sam has to soak his bandages off, clean his wounds and rebandage. The whole process takes 2 to 3 hours depending on how it goes and how his wounds are. For awhile now we have been considering a bath remodel to provide Sam with a more therapeutic tub for his wound care. After hearing great results from another EB family, we have decided to move forward with the installation of a specific tub made by Jason International which provides a technology that will be beneficial to Sam and his wound healing process, and hopefully make bath time more enjoyable as well! We will need to do a remodel of the bathroom and it will be costly, so Julio has started a fundraiser in correlation with the marathon he will be running in October. Any proceeds generated will be put towards this project for Sam. Thank you in advance if you are able to help, anything is greatly appreciated! Thank you for taking the time to learn about our Sam and what he deals with.

For more information about the fundraiser or to donate visit:


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