It is EB Awareness week 2012. Sam took awareness bracelets to school today and they sold 100 of them to help fund research. We are so thankful for the support of his wonderful classmates! We have more available if you would like one. ($2 ea)
We still do not have a cure for this horrible disease but hopefully it will come soon with more awareness efforts to fund research.
Thank you for coming to this blog and learning more about EB. It means the world to us!