What is EB?
WHAT IS EB?
Epidermolysis Bullosa is a painful, life threatening disease of the skin. Sammy has the form called Recessive Dystrophic. In his case the bottom layer of his skin does not adhere properly to the other layers because the collagen 7 protein involved in this function is either missing or mis-shapen.
Because of this genetic defect even slight friction can cause several layers of skin to rip away creating horrific, painful wounds. Normal daily activities can cause blistering or tearing of the skin. Currently there is no cure for EB, only wound management as treatment. Despite the challenges Sam faces with EB, he displays amazing strength every day and inspires those around him.
Friday, March 7, 2014
Run Bloomsday for a Cause This Year!! Join Team Sam!!!
Sam helped design these cool t-shirts at booster.com to help raise EB awareness and funds for research. This Bloomsday you can make a difference by running in your Team Sam shirt! Go online to www.booster.com/runforsam and get your t-shirt! Your support is appreciated!