What is EB?

Epidermolysis Bullosa is a painful, life threatening disease of the skin. Sammy has the form called Recessive Dystrophic. In his case the bottom layer of his skin does not adhere properly to the other layers because the collagen 7 protein involved in this function is either missing or mis-shapen.
Because of this genetic defect even slight friction can cause several layers of skin to rip away creating horrific, painful wounds. Normal daily activities can cause blistering or tearing of the skin. Currently there is no cure for EB, only wound management as treatment. Despite the challenges Sam faces with EB, he displays amazing strength every day and inspires those around him.

Saturday, April 12, 2014

Sam's Wish Trip

Everyone who knows Sam knows he loves tornados and the weather! Here are some pics from Sam's wish trip to Norman, Oklahoma where he got to meet storm chaser Reed Timmer! Sam enjoyed every minute of it!  Thank you Wishing Star!
 He is still praying to see a tornado though :)

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